On this page, you can find my shedinars, which are divided into:
(1) Introductions to key elements of mental capacity law
(2) ‘In conversation’ with relevant – and interesting – people concerned with mental capacity.
In general, each shedinar is about 20 minutes long.
Introductions to key elements (boring but necessary caveat: none of these constitute legal advice)
- Capacity – the fundamentals
- Best interests – the fundamentals
- Deprivation of liberty – the fundamentals
- The Court of Protection
- The Mental Health Act/Mental Capacity Act interface
- DNACPR notices and advance care planning
- The inherent jurisdiction of the High Court in relation to adults
- The MCA and 16/17 year olds
- The MCA and money
- Capacity for care providers.
Mental capacity matters more broadly
- The COP top 10 health and welfare cases (to mark the 14th birthday of the MCA on 1 October 2021)
- LPS on the shelf – what to do now (recorded in April 2023)
- How to read a Court of Protection judgment
- 2022 – a year in (mostly) Court of Protection cases
- The mental capacity and mental health law and policy landscape – a stocktake (recorded in August 2023)
- Necessary and unnecessary complexity in decision-making capacity – and ‘lifestyle choice’
You can find these in podcast form if you search for “Mental Capacity Matters with Alex Ruck Keene” on the podcast app of your choice, or click on this link from a suitable device.
In conversation with (and a brief idea of what each conversation covers)
- Mark Taubert, Palliative Care Physician, discussing the law and medicine in the context of advance care planning
- Jakki Cowley, IMCA, asking what IMCA advocacy is, top tips for engaging with medical teams and advocacy for those in Prolonged Disorders of Consciousness.
- Julian Sheather, specialist adviser in ethics and human rights to the British Medical Association, grappling with some of the ethical underpinnings to the Mental Capacity Act 2005
- Dr Gareth Owen, psychiatrist, discussing what makes some capacity assessments complex, some tips for addressing messiness, and the importance of time
- Gill Loomes-Quinn, (in her words) a disabled scholar-activist, with a background in community advocacy, discussing, in particular, her PhD research around advance decision-making in the context of disability
- Dr Lucy Series, academic, discussing in particular, the long and complex history of confinement, and why Cheshire West may be a case of be careful what you wish for.
- Dr Lucy Stephenson, psychiatrist and psychotherapist, discussing advance decision-making tools for people living with bipolar disorder and overcoming fears on the part of both service users and professionals.
- Lorraine Currie, social worker, discussing living the MCA in practice, and building invisible scaffolding as the supporter for her daughter Grace, who lives with an acquired brain injury.
- Dr Camilla Parker, legal and policy consultant, discussing deprivation of liberty and 16/17 year olds, and the practice guidance that we have produced about this issue for Research in Practice.
- Dr Lade Smith CBE, psychiatrist, discussing the ways in which capacity assessments under the MCA do and do not capture the cultural aspects of capacity, and the consequences for discrimination.
- Dr Tania Gergel, philosopher, discussing what philosophy can bring to thinking about decision-making capacity, the (mis)use of the presumption of capacity and advance decision-making and personhood.
- Professor Wayne Martin, philosopher and Director of the Essex Autonomy Project, digging into the concept of ‘insight’ and tease out how it might relate to mental capacity.
- George Szmukler, Emeritus Professor of psychiatry, discussing the ‘fusion law’ concept that he has been instrumental in developing.
- Emma Overton, Policy and Practice Development Lead at North East Lincolnshire CCG, discussing commissioning and joined up thinking, especially in the medical treatment context.
- The Revd Dr Geoff Morgan, Hospital Chaplain, discussing spirituality, advocacy and the MCA.
- Dr Steve Fleming, cognitive neuroscientist and psychologist, discussing metacognition, insight and capacity.
- Dr Scott Kim, psychiatrist and bioethicist, on a critical friend appraisal of the MCA and the consequences of standing in the shoes of the person.
- Chris Danbury, Chris Newdick and Carl Waldmann, in conversation with the editors of Law and Ethics in Intensive Care (2nd edition)
- Dr Nuala Kane, psychiatrist and clinical research associate on the Mental Health and Justice Project, on capacity rationales, accountability and support
- Dr Idris Baker, palliative care specialist, looking at what decisions are from the medical and legal perspective.
- Helen Gilburt, from the King’s Fund, discussing their report on Understanding clinical decision-making at the interface of the Mental Health Act (1983) and the Mental Capacity Act (2005), most easily accessed by this blog here.
- Dr Chris Danbury, intensive care doctor, discussing the impact of the Supreme Court decision in Aintree v James, the concept of futility, and mediation in clinical negligence and serious medical treatment cases.
- Akiko Hart, researcher and campaigner, discussing responding to MHA reform proposals and the complexities of MHA reform more generally.
- Professor Hanna Kienzler, Professor of Global Mental Health, digging into the complexities of the right to independent living in crisis situations, and how, in the absence of formal support structures, families navigate decision-making for those with mental disabilities.
- Alix Lewer, speech and language therapist and charity founder, discussing the work of the Include choir, the role of music in supporting those with communication impairments, and how people can be educated by stealth as to what constitutes practicable steps to support capacity.
- Professor Rosie Harding, legal academic, discussing accessible information and practicable steps to support decision-making.
- Dr Tim Meek, anaesthetist, discussing the role of anaesthetists before and during operations, how they approach DNACPR documents, and new guidelines produced by the Association of Anaesthetists.
- Dr Lucy Series, academic, (in a follow-up discussion to that we had in 2020) talking about Deprivation of Liberty in the Shadows of the Institution.
- Jodie Rawles, PhD student, discussing contraception, support and intellectual disability.
- Dr Bev Clough, academic, discussing whether and how mental capacity law can move beyond the binaries it sometimes seems stuck in.
- Dr Thomas Kabir, researcher, discussing do’s and don’ts of involving those with lived experience in research in the mental health context.
- Dr Zoe Fritz, consultant in acute medicine, discussing her work developing the ReSPECT framework to prompt and record discussions about the shared understanding required as between doctors and patients to enable proper advance care planning.
- Ilora Finlay (Baroness Finlay of Llandaff), the first Chair of the National Mental Capacity Forum, reflecting on the tasks she faced pre-pandemic to champion the MCA, and the particular challenges of the MCA under strain in the pandemic.
- Usha Grieve and Sarah Malik of the charity Compassion in Dying, reflecting on the promises and pitfalls of advance decision-making.
- Dr Chloe Beale, psychiatrist, discussing the uses and misuses of capacity in the context of responding to suicide risk.
- Dr Lucy Stephenson, psychiatrist and psychotherapist, talking about the piloting and evaluation of co-produced advance choice documents.
- Professor Andy Phippen, academic, talking about online safeguarding, capacity, and why Andy really dislikes the term ‘online safety.’
- Dr Lade Smith CBE, psychiatrist, talking about advance choice documents and their potential.
- Professor Jill Stavert and Professor Colin McKay, members of the executive team of the Scottish Mental Health Law Review, discussing the Scottish perspective on mental health law reform.
- David Mason, PhD student, discussing research with autistic people into decision-making styles and stresses, and how this research can assist in thinking better about mental capacity assessments in the context of autism.
- Dr Camillia Kong and Professor Penny Cooper, academic researchers, discussing the genesis, findings and headline points of the Judging Values And Participation In Mental Capacity Law project.
- Dr Gareth Owen, psychiatrist, discussing interdisciplinarity, capacity paradigms and new challenges for capacity.
- Dr Janet Weston, historian discussing a longer-term perspective on the Court of Protection and what a mid-century case from the old Court of Protection can show us about modern capacity dilemmas.
- Daisy Cheung and Dr Michael Dunn, legal academics, discussing their new edited book on advance directives across Asia.
- Professor Ken Wilson and Dr Julia Lewis, psychiatrists, discussing alcohol related brain damage and capacity.
- Dr Piers Gooding, disability researcher, discussing supporting decision-making and reducing coercion in mental health care.
- Bonnie Venter, academic researcher, discussing capacity and organ donation – the complexities and the potential for discrimination.
- Professor Shih-Ning Then, academic researcher, discussing the point and the principles of supported decision-making.
- Siddiq Diwan, Chaplain, discussing the Islamic perspective on the concepts of capacity and best interests, and navigating these issues in the context of medical treatment decisions.
- Abiy Babatunde, academic researcher, discussing a project researching how to turn advance choice documents into reality so as to seek improve Black service users’ experiences in mental health services in South London.
- Dr Kevin Ariyo, psychologist and academic researcher, discussing interpersonal influence and decision-making capacity.
- Dr Elisabeth Alton, GP and academic researcher, discussing forensic medical examination and adults at risk of harm.
- Dr Magda Furgalska, academic researcher, discussing her research into people’s lived experiences of ‘insight’ in the context of (often compulsory) mental health care.
- Isabel Astrachan and Dr Scott Kim, researchers and bioethicist, discussing why ‘suspending’ the presumption in the face of legitimate reason to be concerned about a person’s ability to make a decision is not only the legally, but the ethically correct thing to do.
- Dr Julia Duffy, academic researcher, talking about how a focus on the indivisibility of rights may help us move beyond a focus on autonomy as the basis for personhood in the the context of those with cognitive impairments.
- Professors Brendan Kelly and Mary Donnelly, psychiatrist and legal academic respectively, about the genesis and scope of, and insights, from the Routledge Handbook of Mental Health Law they have edited.
- Arianna Kelly, barrister, discussing social care charging and the complications that arise where the person in question has impaired decision-making capacity.
- Graham Morgan, engagement and participation officer ( lived experience) at Mental Welfare Commission for Scotland and writer, discussing his perspective on coercion in mental healthcare, what ‘lived experience’ means, and what is truly important in the mental health context.
- Professor Gavin Davidson, academic researcher, discussing how to compare mental health and mental capacity frameworks across countries: in conversation.
- Dr Margaret Flynn, Chair of the National Mental Capacity Forum, reflecting on 10 years since the publication of the report of the House of Lords select committee convened to conduct post-legislative scrutiny of the Mental Capacity Act 2005,
- Jonathan Simpson, academic researcher, talking about independent facilitation in the creation of mental health advance choice documents.
- Jacob Jorem, Norwegian psychiatrist, lawyer and researcher, talking about the Norwegian experience introducing decision-making capacity into (at least part of) mental health law,
- Professor Michael Preston-Shoot, Emeritus Professor Social Work, talking about the evidence from and the implications of a national analysis of safeguarding adults reviews.
- Professor Rosie Harding, legal academic, for a second visit, talking about the Co-Producing Accessible Legal Information (COALITION) Project.
- Dr Harleen Kaur Johal, doctor and PhD candidate, talking about conflict and conflict avoidance in the ICU.
- Colleen Simon and John Mitchell, AMHPs, talking about AMHPs, MHA admission and changing cultures.
- Hillary Chua, legal academic, talking about the two lives of a Mental Capacity Act in Singapore and England & Wales.
- Dr Victoria Bradley, palliative care consultant, talking about choices and honesty in palliative care.
- Professor Beverley Clough and Dr Laura Pritchard Jones, legal academics, talking about mental capacity law, sexual relationships and intimacy.
You can find these in podcast form if you search for “Mental Capacity Matters with Alex Ruck Keene” on the podcast app of your choice, or click on this link from a suitable device.